We are ecstatically excited for Stroke Thrivers Hugh and Sofia who will be hitting the slopes at Cardrona Alpine Resort, NZ, Wanaka, New Zealand in July/ August this winter. Congratulations Hugh and Sofia! And thank you Foundation North and Young Stroke Thrivers Foundation (YSTF) for making it possible!
Hugh is 7 years old from Whangarei, Northland. This will be his first time skiing EVER. He sure is looking forward to his Adaptive skiing adventure!
Sofia is 10 years old from Auckland, New Zealand. She has indoor skied twice with YSTF and Adaptive Snow Sports NZ at SNOWPLANET and instantly fell in love with skiing. We don't blame her!
And big shout out to our sponsors Edgewater Lake Wanaka, Cardrona Alpine Resort, Air New Zealand and Adaptive Snow Sports all who helped make this magical winter adventure come alive for Hugh and Sofia. Thank you!
Check out Black Peak Media's amazing video from Winter 2016 of Zoe during her 2 days at Cardrona. Her first time stand up skiing AND alpine skiing!
Founder, Maria, rocking it after her Achilles' tendon transfer operation 6 weeks ago at Auckland,s Mercy Hospital, Epsom., New Zealand
#castoff #surgerysuccesssofar #earlydays #cast #healing #swollen#40newstitches #moonboot #heavymoonboot #rehab #physio#inexperiencedselfie #selfiesmile
#UniteForChange as May is #PaediatricStrokeAwareness month around the Globe*
Please visit their website http://united4pediatricstroke.org and be part of the change as #ChildStrokes really do happen. #BeVisable#BeHeard #UniteForChange
#Stroke is an emergency at ANY age! All too often, the signs of stroke in children and teens are missed by families or are delayed or misdiagnosed by clinicians and emergency medical staff because of a lack of information. With this year's Pediatric Stroke Awareness Campaign, they can begin to change that with your help!
Be #VISIBLE and to put paediatric stroke on the map! This is a chance to share with the world that a stroke can happen to babies, children, teens, and even before birth through real life stories.
Aphasia (ay-faze-yuh)n. Partial or total loss of the ability to articulate ideas or comprehend spoken or written language, resulting from damage to the brain caused by injury or disease
Types of Aphasia
#ExpressiveAphasia (non-fluent): With expressive aphasia, the person knows what he or she wants to say, yet has difficulty communicating it to others. It doesn't matter whether the person is trying to say or write what he or she is trying to communicate.
#ReceptiveAphasia (fluent): With receptive aphasia, the person can hear a voice or read the print, but may not understand the meaning of the message. Oftentimes, someone with receptive aphasia takes language literally. Their own speech may be disturbed because they do not understand their own language.
#AnomicAphasia. With anomic aphasia, the person has word-finding difficulties. This is called anomia. Because of the difficulties, the person struggles to find the right words for speaking and writing.
#GlobalAphasia. This is the most severe type of aphasia. It is often seen right after someone has a stroke. With global aphasia, the person has difficulty speaking and understanding words. In addition, the person is unable to read or write.
#PrimaryProgressiveAphasia. Primary progressive aphasia is a rare disorder where people slowly lose their ability to talk, read, write, and comprehend what they hear in conversation over a period of time. With a stroke, aphasia may improve with proper therapy. There is no treatment to reverse primary progressive aphasia. People with primary progressive aphasia are able to communicate in ways other than speech. For instance, they might use gestures. And many benefit from a combination of speech therapy and medications.
Happy Easter Sunday/ Long Weekend from #YSTF! We hope you are having a fab time during this 4 day long weekend wherever in the world you may be, whatever adventure you may be doing right now, or wherever you might be taking up that much needed revitalising rest.
Photo #1 Founder Maria's Good Friday started off with panic as she got water in her cast during a shower. Eeek! Off to Westgate Accident and Medicalshe went. After sawing off 2 lays of cast on her over sensitive foot, she is now resting up at home very much enjoying her #EasterEggs
Photo #2 Maria being house bound in her very heavy non weight bearing cast for the next six weeks. Perfect opportunity to read those books she's been putting on hold. First stop The Huffington Post's, Arianna Huffington's #Thrive
Photo #3 oh and here is Maria's fourth and final cast I promise! :D #Wednesday19April #4castsin2weeks
Doing what she does best, Maria helped make up the very few who's post-op recovery doesn't quite go to plan :D She happen to be the ‘fortunate’ 1 of 10 people this happens to... A cast change yesterday turned into another operation as one of her tendons had pulled away and torn. Surgeon reopened the wound, fixed the tendon and screwed it in place. She now permanently has a piece of metal in me. Then again, she always has being from West Auckland and all 😉🎸🤘
Photo#1 #YoungStrokeThriver's Mckenzie and Maria have a well overdue good ol' catch up at Mercy Hospital, Epsom.
Maria has made it through her first week of life in a non weight bearing cast- 5-6 more weeks to go and counting!
Photo#2 Marias niece and nephew show off their creative talents on Maria otherwise bland cast
After 22hrs of not eating or drinking yesterday, her appetite is slowly coming back to life. Now the long road to #rehabilitation begins...
Here are some notes about her surgery:
“...her right foot is causing increasing symptoms. She is quite keen to look at correction and recently has had gait analysis at The Wilson Home Trustalong with assessment by Professor Stott. The upshot of this is that there has been the recommendation for a tibialis anterior transfer to the mid portion of the foot, lengthening of tibialis posterior, gastrocnemius lengthening, +/- hind foot osteotomy and Botox to tibialis anterior as protection for the tendon transfer.”
Resulting in surgery: tibial tendon transfer, calf lengthening tibialis posterior tendon lengthening, botox administration R tibialis interior, R calcaneal osteotomy
Final result: a tibialis anterior transfer to the mid portion of the r) foot lengthening of tibialis posterior, gastrocnemius lengthening but luckily no ostetomy of my heal bone as surgeon was happy with the alignment of my foot