After 2 days of alpine skiing, it is time for a bit of rest and recovery for Young Stroke Thrivers Hugh and Sofia. They more than deserve it after all their hard work and effort up at Cardrona! It is the perfect day for a coffee and cake or delicious meal at Relishes Cafe, Francesca's Italian Kitchen Wanaka, Kai Whakapai Cafe or catching the latest movie at Cinema Paradiso. Maybe even squeeze in a bit of grocery shopping at New World Wanaka. They are spoilt for choice with so many kind and generous sponsors here in Wanaka, New Zealand. Thank you to each and every one of our our sponsors!
Hugh is all rugged up in Mons Royale merino ready to hit the slopes with Adaptive Snow Sports NZ! Sofia bringing her A-game to the slopes with Mons Royale!
Awesome effort from Hugh and Sofia during their Day 2 at Cardrona Alpine Resort, NZ. Wait a go team!
And a big shout out to Foundation North. We couldn't have done it without you :)
Mons Royale #MonsRoyale
Both Hugh and Sofia were real troopers today at Cardrona Alpine Resort, NZ as they were learning to alpine ski for the first time with the encouraging and supportive Adaptive Snow Sports NZ instructors and volunteers. Their top quality merino Mons Royale clothing was much needed to stay warm and snug. After a blissful night of rest and recovery at beautiful Edgewater Lake Wanaka, 2nd day of skiing is today. Woohoo!! We are all super excited about another fun filled day up in the snow 🤣🎿❄️
Hugh, Sofia, Adaptive Snow Sports NZ, Cardrona Alpine Resort, NZ, Foundation North, Young Stroke Thrivers Foundation made it into the Wanaka Sun. World famous in Wanaka, New Zealand 😊
Photo in the Wanaka Sun article by talented Jodie Rainsford Photography
Young Stroke Thrivers Foundation founder, Maria, was all too excited about Hugh and Sofia's upcoming Adaptive Snow Sports NZ at Cardrona Alpine Resort, NZ that she forgot to post her last day at Physio Fix on Friday. 12 weeks of physio later..
#15weekspostsurgery #arcillestendontransfer #21yearspoststroke #stroke#physio
#physiofix #rehab #patience
Click on the link below to read a Stuff.co.nz article about young stroke thriver Sofia's #stroke and her upcoming first ever alpine skiing trip to Cardrona Alpine Resort, NZ with Young Stroke Thrivers Foundation and Foundation North
Massey University conducted a recent survey about the experiences of younger stroke survivors in New Zealand. The aim of the study was to investigate the different problems that younger stroke survivors experience #poststroke.
- Lack of information was a problem experienced by a large number of the younger stroke survivors in this sample
- Limited information given after the acute phase regarding the rehabilitation process and what life would be like post-stroke
- An important take-away from this research is that younger stroke survivors in New Zealand experience a range of different problems including employment loss or disruption, problems with invisible disabilities and family life disruption.
- As stroke is commonly seen as an older aged disease; younger stroke survivor’s problems are often overlooked.
- Problems with invisible disabilities was rated as a significant problem.
- Employment loss or employment disruption, difficulty with self esteem,
difficulty with finances, reduction in leisure activities, family life disruption, lack of information post-stroke, limited access to community support services, difficulty returning to or beginning study, social isolation, problems with transport were rated as somewhat of a problem
- Post-stroke services should endeavour to acknowledge and address these different difficulties, as well as get to know the individual stroke survivors so that they feel heard and supported and believe that their problems have been validated.
#BeVisible #BeHeard #UniteForChange #PediactricStrokeAwareness
"The only failure is not to try" Iron Nun. We couldn't agree more here at Young Stroke Thrivers Foundation!
We are ecstatically excited for Stroke Thrivers Hugh and Sofia who will be hitting the slopes at Cardrona Alpine Resort, NZ, Wanaka, New Zealand in July/ August this winter. Congratulations Hugh and Sofia! And thank you Foundation North and Young Stroke Thrivers Foundation (YSTF) for making it possible!
Hugh is 7 years old from Whangarei, Northland. This will be his first time skiing EVER. He sure is looking forward to his Adaptive skiing adventure!
Sofia is 10 years old from Auckland, New Zealand. She has indoor skied twice with YSTF and Adaptive Snow Sports NZ at SNOWPLANET and instantly fell in love with skiing. We don't blame her!
And big shout out to our sponsors Edgewater Lake Wanaka, Cardrona Alpine Resort, Air New Zealand and Adaptive Snow Sports all who helped make this magical winter adventure come alive for Hugh and Sofia. Thank you!
Check out Black Peak Media's amazing video from Winter 2016 of Zoe during her 2 days at Cardrona. Her first time stand up skiing AND alpine skiing!
Founder, Maria, rocking it after her Achilles' tendon transfer operation 6 weeks ago at Auckland,s Mercy Hospital, Epsom., New Zealand
#castoff #surgerysuccesssofar #earlydays #cast #healing #swollen#40newstitches #moonboot #heavymoonboot #rehab #physio#inexperiencedselfie #selfiesmile
#UniteForChange as May is #PaediatricStrokeAwareness month around the Globe*
Please visit their website http://united4pediatricstroke.org and be part of the change as #ChildStrokes really do happen. #BeVisable#BeHeard #UniteForChange
#Stroke is an emergency at ANY age! All too often, the signs of stroke in children and teens are missed by families or are delayed or misdiagnosed by clinicians and emergency medical staff because of a lack of information. With this year's Pediatric Stroke Awareness Campaign, they can begin to change that with your help!
Be #VISIBLE and to put paediatric stroke on the map! This is a chance to share with the world that a stroke can happen to babies, children, teens, and even before birth through real life stories.
Aphasia (ay-faze-yuh)n. Partial or total loss of the ability to articulate ideas or comprehend spoken or written language, resulting from damage to the brain caused by injury or disease
Types of Aphasia
#ExpressiveAphasia (non-fluent): With expressive aphasia, the person knows what he or she wants to say, yet has difficulty communicating it to others. It doesn't matter whether the person is trying to say or write what he or she is trying to communicate.
#ReceptiveAphasia (fluent): With receptive aphasia, the person can hear a voice or read the print, but may not understand the meaning of the message. Oftentimes, someone with receptive aphasia takes language literally. Their own speech may be disturbed because they do not understand their own language.
#AnomicAphasia. With anomic aphasia, the person has word-finding difficulties. This is called anomia. Because of the difficulties, the person struggles to find the right words for speaking and writing.
#GlobalAphasia. This is the most severe type of aphasia. It is often seen right after someone has a stroke. With global aphasia, the person has difficulty speaking and understanding words. In addition, the person is unable to read or write.
#PrimaryProgressiveAphasia. Primary progressive aphasia is a rare disorder where people slowly lose their ability to talk, read, write, and comprehend what they hear in conversation over a period of time. With a stroke, aphasia may improve with proper therapy. There is no treatment to reverse primary progressive aphasia. People with primary progressive aphasia are able to communicate in ways other than speech. For instance, they might use gestures. And many benefit from a combination of speech therapy and medications.
Happy Easter Sunday/ Long Weekend from #YSTF! We hope you are having a fab time during this 4 day long weekend wherever in the world you may be, whatever adventure you may be doing right now, or wherever you might be taking up that much needed revitalising rest.
Photo #1 Founder Maria's Good Friday started off with panic as she got water in her cast during a shower. Eeek! Off to Westgate Accident and Medicalshe went. After sawing off 2 lays of cast on her over sensitive foot, she is now resting up at home very much enjoying her #EasterEggs
Photo #2 Maria being house bound in her very heavy non weight bearing cast for the next six weeks. Perfect opportunity to read those books she's been putting on hold. First stop The Huffington Post's, Arianna Huffington's #Thrive
Photo #3 oh and here is Maria's fourth and final cast I promise! :D #Wednesday19April #4castsin2weeks
Doing what she does best, Maria helped make up the very few who's post-op recovery doesn't quite go to plan :D She happen to be the ‘fortunate’ 1 of 10 people this happens to... A cast change yesterday turned into another operation as one of her tendons had pulled away and torn. Surgeon reopened the wound, fixed the tendon and screwed it in place. She now permanently has a piece of metal in me. Then again, she always has being from West Auckland and all 😉🎸🤘
Photo#1 #YoungStrokeThriver's Mckenzie and Maria have a well overdue good ol' catch up at Mercy Hospital, Epsom.
Maria has made it through her first week of life in a non weight bearing cast- 5-6 more weeks to go and counting!
Photo#2 Marias niece and nephew show off their creative talents on Maria otherwise bland cast
After 22hrs of not eating or drinking yesterday, her appetite is slowly coming back to life. Now the long road to #rehabilitation begins...
Here are some notes about her surgery:
“...her right foot is causing increasing symptoms. She is quite keen to look at correction and recently has had gait analysis at The Wilson Home Trustalong with assessment by Professor Stott. The upshot of this is that there has been the recommendation for a tibialis anterior transfer to the mid portion of the foot, lengthening of tibialis posterior, gastrocnemius lengthening, +/- hind foot osteotomy and Botox to tibialis anterior as protection for the tendon transfer.”
Resulting in surgery: tibial tendon transfer, calf lengthening tibialis posterior tendon lengthening, botox administration R tibialis interior, R calcaneal osteotomy
Final result: a tibialis anterior transfer to the mid portion of the r) foot lengthening of tibialis posterior, gastrocnemius lengthening but luckily no ostetomy of my heal bone as surgeon was happy with the alignment of my foot
Words from founder Maria, the day before surgery on her foot: "Over the last few weeks there has been a few up and downs, something of which we all experience, as I prepare myself for surgery and the long road ahead. A positive mind set is essential!"
Click on this link:~www.redbull.com/au-en/how-to-harness-fear-to-life-a-more-fulfilling-life
Nearly there. Come on. Just that little bit more. And she made it!! The littlest things go a long way as Maria tries to straighten her arm while lifting it up and keeping everything aligned. Tricky business where great concentration is involved for what many consider a very simple task!
Progress is being made! #abduction working my #glutes, #latpullldownworking my #lats, and #chestpress working my #pectorals, #triceps and #deltoids
"In exactly 3 weeks time on Wednesday 5 April, I will be undergoing surgery to help correct ongoing problems with my right foot/ ankle/ achilles and future hip and knee issues from my 1996 #stroke. My last surgery on my foot was the year 2000, as I remember going to my high school ball in a moon boot. They were fashionable back then 😄
In preparation to take on post-op rehabilitation by the horns, I have somewhat made the #gym my new home and the gym equipment my new friends 🤣"
#gymworkout #stretching #stronger #tediousexercises#corestrengthening #balance #coordination #motorskills#handeyecoordination #weights #freeweights #handstrengthening#handstretching #musclespasms #muscletightness #musclepain#patience #determination #persistant #active #nopainnogain#positivemindset
Brain Awareness Week (BAW) is the global campaign to increase public awareness of the progress and benefits of brain research. It is to increase community awareness of the potential for improving the long-term health of the brain through lifestyle changes and risk-reduction strategies. The Dana Alliance, based in New York, founded BAW 20 years ago, and continues to administer the campaign alongside the American Society for Neuroscience.
Here is the Brain Awareness Week International Calendar of Events http://www.dana.org/BAW/Calendar/
And events that are taking place in New Zealand http://brainweek.co.nz
The Neurological Foundation of New Zealand has been an official Brain Awareness Week partner for the past ten years. which is a significant public education event with a national programme of ‘Brain Days’ and public lectures.
For one week every #March, #BrainAwarenessWeek unites the global efforts of over 2,200 universities, hospitals, patient groups, government agencies, schools, service organisations and professional organisations in #76countries in a week-long #celebrationofthebrain. During Brain Awareness Week, campaign partners organise creative and innovative activities in their communities to educate and excite people of all ages about the brain and brain research. Events are limited only by the organisers’ imaginations!
Kiwi brain researchers’ world-leading studies on the human brain have led to exciting new insights into the treatment of brain disorders – their work has also helped to raise awareness of the huge importance of brain health and the vital need for continuing research. The Neurological Foundation has been sponsoring New Zealand’s neurological researchers for over forty years and has simultaneously been building public brain health awareness. We are excited to be both a part of the history, and a cornerstone of the future of #neuroscience!
"People with invisible disabilities face a daily dilemma of whether to conceal or reveal their conditions to colleagues" A dilemma those who have had a #stroke or other hidden disabilities at a young age are constantly faced with now and in the future
Where to begin on this amazing guy?! Nick is a warrior through and through. Fifteen years ago Nick suffered a #stroke during a rugby game, leaving the then 27-year-old with locked-in syndrome...
Find out more by watching:
And here is a bonus in-depth article. Highly recommended! www.sportsground.co.nz/nickchisholm